(That has seen FEVR patients)
Add a Doctor E-mail young1@fevr.net (Jane Young)


Dr Vanderleur  Brisbane Australla


 Dr. C. E. van Nouhuys is anophthalmologist at  Canisius Wilhelmina Hospital of Nijmegen  ( http://canisius-wilhelmina.ziekenhuis.nl/index.html ). 

Ik zie dat Dr. C. E. van Nouhuys anophthalmologist bij het Ziekenhuis van Canisius Wilhelmina van Nijmegen is (http://canisius-wilhelmina.ziekenhuis.nl/index.html).


Johannesburg Eye Hospital
Tel:  +27 (11) 888 1440
Fax: +27 (11) 888-1462

I am an Ophthalmologist from South Africa with a surgical and medical retinal practice for the past 15 years. I have many FEVR patients in my practice-at least 45


Dr. Louise Downey (first author on the EVR3 locus paper) who is an ophthalmologist with a lot of experience on FEVR

POC Carmel Toomes C.Toomes@leeds.ac.uk Researching FEVR Dominant & Recessive FEVR In UK

Dr Carmel Toomes (Senior Research Fellow)

Vision Research Group , Molecular Medicine Unit

University of Leeds, Clinical Sciences Building

St James’s University Hospital, Leeds LS9 7TF

Phone 0113 206 6612

  UNITED STATES #1 Pick in US by Mothers & Fathers is  – Dr. Michael Trese in Michigan
Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland, DC Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio
Pennsylvania Rhode Island South Carolina
South Dakota Tennessee Texas Utah Vermont Northern Virginia Washington West Virginia Wisconsin Wyoming




Mark K Walsh, MD, PhD
Retina Associates Southwest
6561 E Carondelet Dr
Tucson AZ 85710
520-886-6639 (fax)
Dr. Walsh completed a vitreoretinal fellowship at William Beaumont Hospital in Royal Oak MI where he was additionally trained by Drs. Michael Trese, Antonio Capone Jr and Kimberly Drenser in all aspects of surgical pediatric retinal diseases, such as FEVR.  He has been caring for FEVR patients from all over Arizona since moving to Tucson in 2009.



  Khaled Tawansy, MD Director, Pediatric Retina & Uveitis Service van Wyck-Dalany Childrens Retina Center 4650 Sunset Blvd #88 Los Angeles, CA 90027 213-669-4586 office 213-669-2344 appointment 213-660-8541 fax Dr Tawansy  is the director of Pediatric Retina & Uveitis Service at CHLA and the founder of van Wyck-Dalany Childrens Retina Center. He treats and sees FEVR patients on a frequent basis and is also collaborating in FEVR research with Dr. Zhang from the University of Utah. Darius M. Moshfeghi MD Assistant Professor Pediatric and Adult Vitreoretinal Surgery, Director of Ophthalmic Oncology Stanford University 1225 Crane Street Menlo Park, CA 94025 Phone: 650-323-0231 Fax: 650-323-6385 Email: dariusm@stanford.edu
The Vision Center Children’s Hospital Retina Institute www.thevisioncenteratchla.org
4650 Sunset Boulevard
 P.O. Box 27980 Mailstop #88
Los Angeles, CA 90027-0980  www.TheVisionCenterAtCHLA.org
Phone: (323) 361-2347
Toll free (877) 245-2393
Fax: (323) 361-3524


Retina Consultants of Colorado Dr. Kevin Brady (retina specialist) Has seen about 20 FEVR Patients
Has been in practice since 1986
e-mail neenee80021@yahoo.com  Noreen

 Connecticut Delaware Florida

Bascom Palmer Eye Institute & @Miami Anne Bates Leach Eye Hospital Facilities in Miami, Naples, Plantation and Palm Beach Gardens, Florida Main Miami Webpage at  http://www.bpei.med.miami.edu

Bascom Palmer Eye Institute – Miami

Bascom Palmer Eye Institute, which serves as the Department of Ophthalmology for the University of Miami Miller School of Medicine in Miami, Florida, is recognized as one of the world’s finest and most progressive centers for ophthalmic care, research and education.

Doctors: Audina M. Berrocal, M.D. – Children FEVR & ROP, etc. Georgia

Hawaii  Idaho
Mike Shapiro, MD
University of Illinois at Chicago(UIC)
offer a genetic eye disease clinic


Raj K. Maturi MD Midwest Eye Institute 201 Pennsylvania Pkwy Indianapolis , IN 46280 Phone: 317-817-1414 Fax: 317-817-1399

 Iowa Kansas Kentucky Louisiana Maine

 Maryland & DC

The Retina Group of Washington  The Retina Group of Washington – Maryland & Northern VA (near Washington, DC) National Eye Institute (NEI) National Institute of Health (NIH) Bethesda Maryland – Clinical Trials and Genetic Testing Only


 Dr. Shizuo Mukai, MD  at  Massachusetts Eye and Ear Infirmary Dr. Shizuo Mukai, MD Clinical Interests
Diseases and surgery of the retina and vitreous, pediatric retina and retinoblastoma

Dr. Michael Trese Dr. Antonio Capone Jr – Works with Dr. Trese Dr. Kimberly Drenser  – Works with Dr. Trese
Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey
New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon


William S. Tasman MD Department of Ophthalmology Wills Eye Hospital 840 Walnut Street Philadelphia , PA 19107-5109 Phone: 215-928-3073 Fax: 215-928-3853 Email: wst1@ureach.com

Rhode Island South Carolina

South Dakota Tennessee


Albert O. Edwards, M.D., Ph.D. Assistant Professor Department of Ophthalmology and McDermott Center for Human Growth and Development University of Texas Southwestern Medical Center 5323 Harry Hines Blvd Dallas, TX 75390-9057 Secretary: 214 648 3838 Page: 214 648 8282 Fax: 214 648 2382 Web page:



Mary Elizabeth Hartnett, MD Department of Ophthalmology John A. Moran Eye Center University of Utah 65 Mario Capecchi Dr. Salt Lake City, UT 84132 Office:  (801)581-2352 Fax: (801)581-3357 Email: ME.Hartnett@hsc.utah.edu


Northern Virginia

The Retina Group of Washington

Washington West Virginia


Dennis P. Han MD Professor, Department of Ophthalmology Vitreoretinal Sectional Head The Eye Institute 925 N. 87th Street Milwaukee , WI 53226-4812 Office: (414) 456-7875 Fax: (414) 456-6300 Appointments: (414) 456-2020 Email: dhan@mcw.edu