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From GeneTests: Research Laboratories Testing for FEVR

Research Notice

Clinical trials. For information about clinical trials, see Clinical testing. Do not contact a research laboratory if you are seeking clinical testing. Research laboratories do not perform clinical testing. Laboratories performing research testing are not subject to CLIA regulation. Research testing.  Check the listing of each laboratory to see if direct patient contact is accepted. Research laboratories may prefer that interested patients work through a healthcare provider or genetics clinic. Laboratories conducting research testing for: Familial Exudative Vitreoretinopathy